I am a 51-year-old man, married with two boys of 21 and 17. My wife and I have been through a lot over the last 23 years together, experiencing the highs and lows of life. She has been there for me every step of the way and continues to be upbeat, loving, caring and supportive as we face this difficult challenge. My eldest son is at Loughborough University, my youngest at college doing his A levels. They are the light of my life and make me so proud as they make their way in the world. I have a sister, six years younger than me, who is married with children, a boy and a girl. She has been so supportive, acting as my guide, advisor, and councillor, providing help in any way she can. I still have my 83-year-old Dad but sadly lost my Mum 15 years ago to breast cancer. My Dad continues to go out of his way to do whatever he can to help, often making his way to my place on his beloved train network to see me and his grand kids. We all live in the same area, so I am lucky enough to see a great deal of my family.
I’m blessed to have a fantastic group of friends, most of whom I’ve known for over 30 years, some for over 40, and still see them all today, regularly. It’s so important to have them around: life would be unbearable without the constant banter, abuse, and laughter. My close pals all find their own ways to deal with me, all of them different – men aren’t the best emotional communicators sometimes. We tend to get the “how are you” conversation done as quickly as possible, and then just get on with our time together. The normality is a Godsend.
I’ve always worked, having been in the commercial side of the IT business since I was 21 years old, and had a wonderful career, working with some great companies, including my own, and with some great people. The hard work has afforded me an ok life from a financial perspective and meant I’ve been able to take out a number of insurance policies that, with hindsight, was money well spent. I’ve had a critical illness pay-out, and I have some income protection moving forward. Most importantly I have private medical insurance, so nothing is ever a problem when it comes to treatment. I’m on a number of cancer forums and my heart breaks when I see people suffering from this terrible disease, and then having to face challenges where they cannot receive the medicine they so desperately need due to financial issues.
This story and the accompanying website information, video’s and social media activity is simply an insight into how I try and live and thrive with this terrible disease, and I hope can give some help to others going through the same crap as me.
How do you try and cram what should be 30 or so years of life, into what might only be 2 or 3?
My video journey so far can be found on my YouTube channel.
Then I get invited for a Covid test. Back to the experts for advice on what to do while on chemo. Same varied response from different people. Once again, I’m having to figure out what I should do. I’m thinking I should get it, and everyone advises to have it when the immune system is…Read More
It turns out this is not a bad thing since I recover and get a “feel good” weekend. This gives me the chance to enjoy my latest hobby – electric mountain biking. This is a revelation and has opened up a whole new world of fun. I never knew the surrey hills a full of…Read More
Chemo 11 administered according to plan; side effects moderate but manageable. I also discover Nicola has prescribed the dose at 80% to give my body more of a chance. Chemo 12 goes ahead without delay, again at 80% – as I sit here typing, I’m in the usual steroid zone – wired but tired. I…Read More
One thing that has kept me sane during these difficult times is the charity I created in March 2020. I have always struggled to find other men in my position to talk to and share experiences with. On the few occasions I have met those people it was extremely liberating and provided a great source…Read More